| Aging-Related Diseases |
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Alliance for Aging Research
2021 K Street, NW, Suite 305
Washington, DC 20006
Voice: 202-293-2856
Fax: 202-785-8574
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National Council on Aging
409 Third Street, SW, Suite 200
Washington, DC 20024
Voice: 202-479-1200
Fax: 202-479-0735
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National Institute on Aging
Building 31, Rm. 5C27, 31 Center Dr.
Bethesda, MD 20892-2292
Voice: 800-222-2225
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| AIDS Dementia |
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CDC National Prevention Information Network
P.O. Box 6003
Rockville, MD 20849-6003
Voice: 800-458-5231
TTY: 800-243-7012
Fax: 888-282-7681
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Brain Injury Association
105 N. Alfred St.
Alexandria, VA 22314
Voice: 800-444-6443
Fax: 703-236-6001
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Think First Foundation
5550 Meadowbrook Dr., Suite 110
Rolling Meadows, IL 60008
Voice: 800-844-6556
Fax: 847-890-9005
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| Bladder/Bowel |
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Health Communities .Com
Physician developed and monitored.Provides links to multiple bladder conditions and problems. Can submit questions to a Specialist.
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National Institute of Neurological Disorders and Stroke
Provides printable information in English and Spanish on support, research, patient and public education, advocacy, prevention, treatment, and links to urologist. Site has great pictures to help explain conditions.
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Mayo Clinic
Diseases/ConditionsProvides multiple links to various conditions and diseases including bladder and bowel. Gives signs/symptoms, causes, risk factors, advocacy, screening, complications, treatment, prevention, self-care, and coping skills.
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About Womens Health
Comprehensive Web-Site including Bowel and Bladder Issues
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Institute for Bowel Incontinence
Provides information on causes, prevention, and treatment.Has Call Nurse Line can ask nurse questions toll free. Also have facts with questions and answers.
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American Academy of Family Physicians
Provides conditions A-Z what the condition is and treatment.
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| Brain Tumor |
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American Brain Tumor Association
2720 River Rd., Suite 146
Des Plaines, IL 60018
Voice: 800-886-2282
Fax: 847-827-9918
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| Epilepsy |
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Epilepsy Foundation
4351 Garden City Dr.
Landover, MD 20785
Voice: 800-332-1000
Fax: 301-577-2684
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| Head Injury/Trauma |
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Brain Injury Association/Family Help Line
105 N. Alfred St.
Alexandria, VA 22314
Voice: 800-444-6443
Fax: 703-236-6001
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Rehabilitation Research Center for Traumatic Brain and Spinal Cord Injury
950 S. Bason Ave., Suite 2011
San Jose, CA 95128
Voice: 800-352-1956
Fax: 408-295-9913
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| Multiple Sclerosis |
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Multiple Sclerosis Association of America
706 Haddonfield Rd.
Cherry Hill, NJ 08002
Voice: 800-532-7667
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| Paralysis |
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The Miami Project to Cure Paralysis
P.O. Box 016960, Mail Locator R-48
Miami, FL 33101
Voice: 800-782-6387
Fax: 305-243-6017
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Paralyzed Veterans of America
801 18th St., NW
Washington, DC
Voice: 800-424-8200
Fax: 202-223-0851
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| Parkinson's Disease |
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American Parkinson Disease Association
345 E. 37th St., Suite 317C
New York, NY 10016
Voice: 888-400-2732
Fax: 212-983-1387
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The National Parkinson Foundation
1501 N.W. 9th Ave.
Miami, FL 33136
Voice: 800-327-4545
Fax: 305-243-4403
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Michael J. Fox Foundation for Parkinson's Research
840 Third St.
Santa Rosa, CA 95404
Voice: 800-850-4726
Fax: 707-544-2363
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Parkinson's Disease Foundation
710 W. 168th St., 3rd Floor
New York, NY 10032
Voice: 800-457-6676
Fax: 212-923-4778
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| Pediatric – Brain Tumor |
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Children's Brain Tumor Foundation
274 Madison Ave., Suite 1301
New York, NY 10016
Voice: 212-448-9494
Fax: 212-448-1022
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| Sexuality |
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Part of Sexual Health Network founded by Mitchell Tepper PhD.
Provides information on fertility, incontinence, for seniors, and on prostate health. Has a chat room for females and males and with a physician.
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Women’s Health. Gov
The National Women’s Health Information CenterUS Department of Health and Human Services Provides information on multiple issues involving women’s health including sexuality and disability.
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ICORD International Collaboration on Repair Discoveries
Vancouver Hospital and Health Services Center Physicians and sexual health nurses provide inform on physiology, male, female, bladder, and fertility.
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Organisation List
Web page list organization and publication related to sexuality and disability.
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| Spinal Cord Injury |
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National Spinal Cord Injury Association
8701 Georgia Ave.
Silver Spring, MD 20910
Voice: 800-962-9629
Fax: 301-588-9414
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Spinal Cord Injury Resource Center
Contains education information on SCI 101, rehabilitation, living with SCI, chat room, bulletin board, classified ads, list of books on SCI
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Spinal Cord Injury Information Network From University of Alabama
Contains 18 basic printable information sheets and information on Model SCI Centers. Is part of National Spinal Cord Injury Statistical Center and National Institute on Disability and Rehabilitation Research which are the clearinghouses for statistics and research.
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Christopher and Dana Reeves Paralysis Resource Center
Contains printable information in English and Spanish on health, rehabilitation, activities, living, tools, technology, rights, benefits, research, caregivers, and lending library.
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Transverse Myelitis Association
List of general resources with direct links to treatment centers, rehabilitation, research, bulletin boards, chat rooms, newsletters, magazines, articles, pamphlets, University of Miami site, NSCIA fact sheets, available books, e-mail list, and other resources.
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| Stroke |
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American Stroke Association
Web site contains printable information for patient/families on stroke, prevention, and living with stroke.There is also information on research, statistics and latest news. Can subscribe to Stroke Connection Magazine. Also has an on line discussion board for survivors of stroke
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National Institute of Neurological Disorders and Stroke
Web site contains printable information in English and Spanish on stroke, treatment, prognosis and research. Has list of additional resources.
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Mayo Clinic
Under Diseases/Conditions you will find list of numerous diseases and conditions. Stroke is one of many. Web site contains information on signs/symptoms, causes, risk factors, diagnosis, treatment, prevention, and coping skills. At the end of each there are links to related topics.
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National Institute of Neurological Disorders and Stroke
Web site contains printable information in English and Spanish on stroke, treatment, prognosis and research. Has list of additional resources.
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Washington University in St Louis Medical School
Web site contains education information on what, diagnosis, treatment, living, caregivers, and stroke news in English and Spanish. Also has multiple links to other resources.br>
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Stronger after Stroke
A book by Peter G Levine with strategies to maximize recovery after Stroke
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| TBI |
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Brain Injury Association of America
Provides information on what is brain injury, treatment, rehabilitation, prevention, education, publications, research, links to survivors and other resources. Has links to state associations.
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National Institute of Neurological Disorders and Stroke
Web site contains printable information in English and Spanish on stroke, treatment, prognosis and research. Has list of additional resources.
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TBI Guide
Downloadable book for patients and family containing information on how the brain works, what happens when injury occurs, coping with common problems, seizures, emotional problems, returning to school, prognosis, and where to get help.
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Family Caregiver Alliance, National Center on Care Giving
Web site for caregivers of those with chronic disabling health conditions. Provides information for caregivers on education, services, research, advocacy, and support.
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